Comments on: XMRV virus linked to chronic fatigue, says study http://www.dancewithshadows.com/pillscribe/xmrv-virus-linked-to-chronic-fatigue-says-study/ The best of pharma news and views Wed, 28 Jul 2010 09:17:36 +0000 hourly 1 http://wordpress.org/?v=3.1 By: Eve Avent http://www.dancewithshadows.com/pillscribe/xmrv-virus-linked-to-chronic-fatigue-says-study/comment-page-1/#comment-2594 Eve Avent Sun, 06 Dec 2009 22:54:39 +0000 http://www.dancewithshadows.com/pillscribe/?p=1306#comment-2594 After 6 years of treatment for depression beginning in 1990, I was finally "diagnosed" with CFS. I said ok, what is that? It's a name that the medical community made up to get you out of their offices and perhaps sell you some very expensive antidepressants. Finally, in 2007 I found an obscure blog where an RN stated that "everyone with CFS or Fibromyalgia, if tested properly, will have Lyme disease." This is a full 17 years after I became ill with all the hallmark symptoms of Lyme disease except the bullseye rash. I am now 55, most of my productive years have been spent sitting in my recliner, except for doctor visits. I was a type A personality before this illness stole my life. This XMRV is just another way to hopefully deflect the attention from the spreading epidemic of Lyme bacteria and it's co-infections. I was an animal rescuer when I got ill. I did not get bitten by a normal "dog tick". I was somehow nailed by a teeny, tiny deer tick. Now the experts that are battling with our government and IDSA and CDC to sound the alarm say that this bacterial infection MAY be spread by mosquitoes!!! Every doctor I've spoken to since my test came back positive for Lyme has told me (with a straight face) that Texas doesn't have Lyme, that's an "East Coast" disease. How do you combat that level of ignorance? After 6 years of treatment for depression beginning in 1990, I was finally “diagnosed” with CFS. I said ok, what is that? It’s a name that the medical community made up to get you out of their offices and perhaps sell you some very expensive antidepressants. Finally, in 2007 I found an obscure blog where an RN stated that “everyone with CFS or Fibromyalgia, if tested properly, will have Lyme disease.” This is a full 17 years after I became ill with all the hallmark symptoms of Lyme disease except the bullseye rash. I am now 55, most of my productive years have been spent sitting in my recliner, except for doctor visits. I was a type A personality before this illness stole my life. This XMRV is just another way to hopefully deflect the attention from the spreading epidemic of Lyme bacteria and it’s co-infections. I was an animal rescuer when I got ill. I did not get bitten by a normal “dog tick”. I was somehow nailed by a teeny, tiny deer tick. Now the experts that are battling with our government and IDSA and CDC to sound the alarm say that this bacterial infection MAY be spread by mosquitoes!!! Every doctor I’ve spoken to since my test came back positive for Lyme has told me (with a straight face) that Texas doesn’t have Lyme, that’s an “East Coast” disease. How do you combat that level of ignorance?

]]> By: Pat McGinn http://www.dancewithshadows.com/pillscribe/xmrv-virus-linked-to-chronic-fatigue-says-study/comment-page-1/#comment-2292 Pat McGinn Thu, 29 Oct 2009 18:11:12 +0000 http://www.dancewithshadows.com/pillscribe/?p=1306#comment-2292 The idea that CFS is caused by a virus is a dangerous red herring. In the first well-recorded outbreak in Akureyri, Iceland, in 1947/8, all the people who came down with CFS also tested positive for antibodies against polio which was then going the rounds in the Scandinavian countries, and yet none of the CFS sufferers got polio. CFS patients are known to be immune to viral diseases, and treating them with the same highly toxic drugs as AIDS patients, would prove to be disastrous. The idea that CFS is caused by a virus is a dangerous red herring. In the first well-recorded outbreak in Akureyri, Iceland, in 1947/8, all the people who came down with CFS also tested positive for antibodies against polio which was then going the rounds in the Scandinavian countries, and yet none of the CFS sufferers got polio. CFS patients are known to be immune to viral diseases, and treating them with the same highly toxic drugs as AIDS patients, would prove to be disastrous.

]]> By: Jean Harrison http://www.dancewithshadows.com/pillscribe/xmrv-virus-linked-to-chronic-fatigue-says-study/comment-page-1/#comment-2143 Jean Harrison Mon, 12 Oct 2009 14:29:19 +0000 http://www.dancewithshadows.com/pillscribe/?p=1306#comment-2143 A couple of minor corrections. Chronic Fatigue Syndrome, by definition, in order to be diagnosed has to last at least 6 months. It can last for years; there are still survivors of the 1955 Royal Free Hospital outbreak who are very ill. Also Epstein Barr is such a common virus it was eliminated as a cause for CFS. It's a virus that is pretty well ubiquitous. XMRV is found in the blood. Testing procedures will become more readily available in the near future. You might want to check on the Whittemore Peterson's Website. A couple of minor corrections. Chronic Fatigue Syndrome, by definition, in order to be diagnosed has to last at least 6 months. It can last for years; there are still survivors of the 1955 Royal Free Hospital outbreak who are very ill.

Also Epstein Barr is such a common virus it was eliminated as a cause for CFS. It’s a virus that is pretty well ubiquitous.

XMRV is found in the blood. Testing procedures will become more readily available in the near future.

You might want to check on the Whittemore Peterson’s Website.

]]> By: Lester E. Miller http://www.dancewithshadows.com/pillscribe/xmrv-virus-linked-to-chronic-fatigue-says-study/comment-page-1/#comment-2138 Lester E. Miller Sun, 11 Oct 2009 18:25:48 +0000 http://www.dancewithshadows.com/pillscribe/?p=1306#comment-2138 I was diagnosed wth prostate cancer and had a radical prostatectomy about 13 years ago. I was diagnosed with N H Lymphoma and treated with chemo and radiation about seven years ago. I would be willing to testing, analysis, etc. if might be helpful for any pongitudinal study. my phone number is 229-226-0193 I was diagnosed wth prostate cancer and had a radical prostatectomy about 13 years ago. I was diagnosed with N H Lymphoma and treated with chemo and radiation about seven years ago. I would be willing to testing, analysis, etc. if might be helpful for any pongitudinal study. my phone number is 229-226-0193

]]> By: dorothy beagles http://www.dancewithshadows.com/pillscribe/xmrv-virus-linked-to-chronic-fatigue-says-study/comment-page-1/#comment-2128 dorothy beagles Sat, 10 Oct 2009 04:15:15 +0000 http://www.dancewithshadows.com/pillscribe/?p=1306#comment-2128 How can XMRV be diagnosed? How can XMRV be diagnosed?

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